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The Charles E. Holman Foundation Morgellons Disease Research Update for September 2011. Visit us at www.thecehf.org

Keeping you in the loop!

Welcome to the CEHF newsletter, Keeping You in the Loop designed to communicate news from the Charles E. Holman Foundation, whose mission is to empower Morgellons patients through scientific research, medical education, public awareness and patient advocacy. Our newsletter will be distributed quarterly to those who have expressed interest in Morgellons Disease.

Order your DVDs now!

Thank you to all who made our 4th Annual Conference on Morgellons the very best to date! Our conference has become an international event with attendees this year from France, Germany, Spain, the U.K. and Mexico as well as 21 states across the U.S. If you were unable to attend this conference, a set of 2 DVDs of the entire day of guest speakers are available on our website at www.thecehf.org. We urge you to order these DVDs as this is the best way to stay up to date on the status of research and medicine as it relates to Morgellons. Order the DVDs today. You will be glad you did. The benefit is two fold: You will be keeping yourself informed while also supporting our efforts in scientific research and medical education. View the 2011 Conference photo gallery here!

TBoone Pickens Endowment Fund!

Photo: A $15,000 gift from the Charles E. Holman Foundation will help advance Morgellons Disease research at OSU-CHS. From left: Morgellons researcher Dr. Randy S. Wymore, Cindy Casey-Holman, R.N., Holman Foundation director, Howard Barnett, Jr., OSU in Tulsa president, Dr. Leigh Goodson, Mary Ann Holman, Dr. Jim Hess, Dr. Rhonda Casey and Dr. Kayse Shrum, Center for Health Sciences provost.

Press Release:
TULSA, Okla. – The Charles E. Holman Foundation has donated $15,000 to the OSU Foundation in continued support of research on Morgellons Disease at OSU Center for Health Sciences.

Holman was a strong advocate for support of research and treatment for the disease. He was not a patient with Morgellons, but was active in an effort to help his wife, Cindy Casey-Holman, R.N., who has Morgellons Disease. Casey-Holman, and Holman’s mother, Mary Ann Holman, presented the actual gift to OSU-CHS and faculty members Randy S. Wymore, Ph.D., and Rhonda L. Casey, D.O. at the Charles Holman Foundation’s annual scientific and medical conference on Morgellons in Austin, Tex. The gift was commemorated in a presentation on the OSU-CHS campus May 23.

Wymore is an associate professor of pharmacology and principal investigator for the OSU Center for the Investigation of Morgellons Disease. He was a speaker at the annual conference. He said the foundation support would ultimately be part of a Pickens Legacy Scholarship Match. When the Holman Foundation has donated $50,000, the Pickens two for one match will contribute $100,000. This total of $150,000 is for future stipend support for OSU-CHS graduate students interested in researching any aspect of Morgellons Disease.

Oklahoma State University Center for Health Sciences in Tulsa offers programs in osteopathic medicine, biomedical sciences and forensic sciences. Since its beginnings more than 30 years ago, OSU-CHS has grown to offer eight graduate degrees. On-campus programs, distance learning and OSU partnerships train osteopathic physicians, research scientists and health care professionals with an emphasis on serving rural and under-served Oklahoma. OSU operates eight clinics, six in Tulsa, one in Enid and one in Muskogee. More information about OSU Center for Health Sciences is available at www.healthsciences.okstate.edu.

View More Here

Research Update - Center for Investigation of Morgellons

Oklahoma State University-Center for Health Sciences, Randy S. Wymore, Ph.D

This summer the Center for the Investigation of Morgellons Disease (CIMD) at the Oklahoma State University Center for Health Sciences had an additional researcher. A summer scholar spent time in the lab complements of the Tulsa Area Biology Education Research Consortium. The student spent over 160 hours doing microscopy and molecular biology under the supervision of Emily VanDegrift, MSFS. Research has focused on the microbiology and molecular biology of material associated with Morgellons Disease. Approximately 40 solid and liquid media cultures were inoculated and grown under various conditions...Click for More

British “Ghost Writer” Makes Ghastly Mistakes re: Morgellons

The Worst of the Worst. I.
A Critique of Will Storr’s Guardian Article
by Elizabeth Rasmussen, PhD
CEHF Scientific Advisory Board

Will Storr went to a medical conference apparently looking for weird and colorful material to write about. He assumed that the product would be at the least, harmless and entertaining. Already, he’d“dressed up as a woman to impress the transexual leader of radical pro-suicide campaigners [sic] The Church of Euthansia [sic], trained in jungle warfare with the British army in Belize, been arrested and then deported under armed guard from LA . . . Click for More

Morgellons Research and Outreach

On Behalf of the Charles E. Holman Foundation and the Board of Directors we would like to express thanks to Kathy White, MS of the Greater Kansas City Area Lyme Disease Association for sponsoring an educational booth at a recent medical conference in Kansas City. Kathy distributed lot of educational material on Morgellons to many family practice residents and physicians from across the nation. The CEHF has already heard from Morgellons patients who benefited from the materials presented to their physicians at this meeting. Thank you Kathy!
Ginger Savely, DNP will be giving a talk on Lyme disease and a talk on Morgellons disease for the annual conference of the American College of Nurse Practitioners in Denver, Colorado on October 9, 2011.
The annual ILADS (International Lyme and Associated Diseases) meeting is coming up in late October. This year’s meeting will be held in beautiful Toronto, Ontario! Ginger Savely, DNP will be doing a presentation on Morgellons. CEHF Director Cindy Casey, RN and Amelia Withington, MD of the CEHF Medical Advisory Panel will be in attendance with lots of educational material on Morgellons. For more information on this exciting event go to www.ILADS.org
Dr. Withington will have Morgellons educational material to distribute at the upcoming annual LDA meeting to be help in Philadelphia, PA on October 1st and 2nd 2011. Preceding this informative meeting, the California Lyme Disease Association (CALDA) will host a highly recommended workshop for advocates. For more information on this event visit www.LymeDiseaseAssociation.org.

Our 2012 conference is slated for March 24, 2012. We are lining up a very exciting agenda and hope that many of you will be able to make this 5th annual conference on Morgellons. Anyone interested in presenting at this conference may submit an abstract or outline of your presentation and your updated CV by email to info@thecehf.org for review by our Board of Directors. Submissions will be accepted until January 15, 2012.

Looking Back

By: Cindy Casey Holman, RN

August 17, 2011

It was exactly 4 years ago today when the CEHF held a rally at the CDC. I remember the heat that day even though Kelly Pickens had kindly brought us misters to help keep us cool. I remember the sweat pouring down my face and my drenched hair as I gave the talk that thanked the CDC for the announcement that they were going to investigate Morgellons. I remember seeing my awesome husband in the crowd as I spoke and he was wiping tears from his eyes...Click for More

Mayo Clinic Report Leaves EVERYONE Scratching Their Heads

Morgellons Disease remains poorly understood in the medical community as well as in much of the media. This was evidenced by a recent retrospective study released by the Mayo Clinic and followed by the media with a plethora of misunderstandings. With all due respect to Davis et al. of the Mayo Clinic, the publication in the Archives of Dermatology has made evident that much work is yet to be done in educating the medical community on the differential diagnosis of Morgellons Disease...Click for More

Welcome Marianne Middelveen!

A warm welcome is extended to Marianne Middelveen, MS, Mdes as she has recently joined our Scientific Advisory Board! Click for More