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Season's Greetings to One and All!

Over the past year, it has been a pleasure to serve the Morgellons community. The Charles E. Holman Foundation wishes to express thanks to the members of the board of directors, medical advisors, scientific advisors, nursing advisors and all CEHF volunteers who have participated in the day-to-day tasks as well as special projects which have allowed us to advance our mission and goals.

Throughout the past year, the strength and recognition of our organization have grown significantly, and attendance at the annual conference has multiplied exponentially. Our revenues have increased enough to allow us steady, determined and assured progression. The CEHF is now recognized as the leading primary source for scientific information regarding Morgellons Disease. We received inquiries from hundreds of patients across the US and worldwide, as well as many media outlets seeking the most updated information and assistance with their future plans. We are humbled and honored by this demonstration of trust and confidence. Looking ahead toward 2014 and beyond, the volunteers of The Charles E. Holman Foundation share blessings and thank yous with the many who have shown faith in our work, intensifying our unwavering passion for finding answers to the Morgellons Disease mystery.

"Those who say it cannot be done should not interrupt those who are doing it."
    ~Chinese Proverb

"Never doubt that a small group of thoughtful, committed people can change the world. Indeed it is the only thing that ever has." 
      ~ Margaret Mead

Sincerely,

Cindy Casey-Holman, RN
Director
The Charles E. Holman Foundation

Save The Date: 2014 Conference Around the Corner

We're pleased to announce the 7th Annual Medical-Scientific Conference on Morgellons Disease will be March 29 & 30, 2014 in Austin, TX. More details about early registration and more will be announced very soon. Check out our website, Facebook page and your inbox.

For those wishing to present at the 2014 Morgellons conference, proposals will be accepted for consideration until January 4, 2014. All submissions should include an abstract, presenter bio and CV. Applications should be sent to info@thecehf.org with "Presenter Application for 2014 Morgellons Conference" in the subject line.

Interested in being an exhibitor or sponsor? Contact us at info@thecehf.org with “Exhibitor or Sponsor Inquiry” in subject line for details. 

The 2013 conference was a huge success. The 2014 conference will be an event no one will want to miss!

Fundraising Campaign to Raise $10,000

December 9, 2013, The CEHF will officially launch a fundraising campaign to cover the next phase of research at The University of New Haven. Dr. Eva Sapi will be in charge of this very important project. Cheryl Bandoski, a student of Dr. Sapi, presented some of this information at the recent ILADS conference in San Diego, CA.  Below is a summary of the next phase of MD research:

Research Plan - University of New Haven
Eva Sapi, PhD, Project Director

The investigation of an infectious cause of Morgellons Disease: Resulting data and information may bring validation to patients and help with the proper diagnosis and treatment of this disease.

The goal of the next phase of the project is to further analyze the infectious agents in skin samples of Morgellons patients, which were previously identified by a novel whole genome sequencing technology. To date, DNA from skin samples from several MD patients were fully sequenced and generated over 150 million-sequence reads/sample. Much of this data is continuing to be studied for any infectious agents present in these tissues. They have successfully identified two infectious agents in those samples: 1) a previously implicated one: Borrelia and 2) a novel one: Helicobacter pylori.

Going forward, funding is needed to further explore this research path confirming this data with species-specific PCR and different immunohistochemistry methods using samples from different Morgellons patients. DNA samples will be extracted from infected skin tissues and the two previously-identified infectious agents will be fully genotyped. This will further characterize and provide details concerning those infectious agents.

In summary, the proposed research will help to further prove that Morgellons disease has infectious agent etiology and will provide evidence of the exact nature of the pathogens involved in this disease. The data from this research will be presented in March 2014 at the Charles E. Holman Annual Conference and will be submitted for publication in a medical/scientific journal.

We encourage everyone to consider donating to this very important and significant project. Share this with anyone and everyone that you can. Challenge others to give matching donations. The validation of Morgellons Disease as a true, physiological condition is on the horizon. 

We will email a fundraising letter during the week of December 9, 2013, and also plan to use an online fundraising site. The site information will be provided in the email, as well as on our website & Facebook page.

Donate now to celebrate this opportunity! We are on a winning road to find the answers.

DONATE TO CELEBRATE!

Recent Media

“Morgellons Disease” first aired Sept 18, 2013 in the USA, and later in other countries. Much of the filming was done during The CEHF 6th Annual Morgellons Conference April 13, 2013. Cindy Casey-Holman, RN, CEHF Director, Peter Mayne, MD, CEHF Medical Advisory Board, Marianne Middelveen, MSc, MDes, CEHF Scientific Advisory Board and Prof. Randy Wymore, PhD, OSU-CHS-CIMD are all interviewed.  

Check out the video >>

Learn more >>

Joe Rogan Questions Everything on SYFY

Some filming for this episode was done during The CEHF 6th Annual Morgellons Conference April 13, 2013.  Greg Smith, MD, CEHF Assoc. Director is interviewed.

Check out the video >>

Learn more >>

Harper's Magazine, September 2013 Issue 

The Devil’s Bait…Symptoms, signs, and the riddle of Morgellons

By Leslie Jamison

This essay article was written by Leslie Jamison, a Yale graduate student who attended the CEHF 5th Annual Morgellons Conference held March 24-25, 2012.

Check out the article >>

Learn more >> 
 

Looking Back: 2013 Timeline of the CEHF Events and Highlights

  • October 17, 2013 - The Charles E. Holman Foundation to Represent Voice of Morgellons Patients at 14th Annual International  Lyme and Associated Disease Society (ILADS) Conference
  • July 2, 2013 - The Charles E. Holman Foundation Applauds Signet Interactive for Top Honors in Website Design
  • July 2, 2013 - 2013 Conference Follow Up and DVDs Available
  • May 16, 2013 - Morgellons Medical Conference Highlights New Research
  • May 08, 2013 - Anonymous Editing on Wikipedia Keeps Morgellons Sufferers in the Dark
  • May 01, 2013 - Morgellons: a Novel Dermatological Perspective as the Multisystem Infective Disease Borreliosis
  • May 01, 2013 - More Evidence that Morgellons Disease is an Infection, Not a Delusion
  • April 03, 2013 - The Charles E. Holman Foundation to Host 6th Annual Morgellons Medical Conference in Austin, TX
  • March 27, 2013 - 6th Annual Conference Is Just Around the Corner
  • February 15, 2013 - 2013 Conference 6th Annual Morgellons Disease Conference
  • February 06, 2013 - Evidence Mounting that Morgellons Disease is an Emerging Infectious Illness, Contrary to CDC Report
  • January 08, 2013 - Laboratory Testing Confirms Infectious Process in Morgellons Disease (MD)

News in Brief …

Veterinarians Research, Education and Awareness of Morgellons Disease 

Increased interest by veterinarians may be opening doors to awareness, education and some future areas of research. The CEHF has had an increase number of MD inquiries from vets around the country. Some were given information by their clients, while others were interested after viewing TV programs. They were all concerned and wanted to stay informed on developing research. The CEHF has hopes that this developing interest will lead to veterinarian collaboration and research down the road.

A milestone in our quest for recognition of Morgellons by mainstream medicine.

On August 20, 2013, a fair and balanced article about Morgellons Disease appeared on DermQuest, an online learning and teaching resource for dermatologists. We have high hopes that this is just the beginning of mainstream medicine’s acceptance of MD.

Learn more about The CEHF being recognized as the supporting organization >>

Genetic Alliance is the world’s leading nonprofit health advocacy organization. Disease InfoSearch developed by Genetic Alliance provides information about diseases and their related support and advocacy networks.  Disease InfoSearch is funded through federal grants from Health Resources and Services Administration (U.S. Dept. of HHS) and a grant from the Leona M. and Harry B. Helmsley Charitable Trust.

Learn more:

Morgellons Disease and The CEHF included on NIH supported sites.

The Charles E. Holman Foundation and Morgellons Disease have been added to the databases of the Genetic and Rare Diseases Information Center (GARD) and the Genetic Alliance/Disease InfoSearch and are the recognized “go-to” resource for MD.  GARD operates under the direction of the ORDR (NIH Office of Rare Diseases Research) and the National Human Genome Research Institute (NHGRI) and is part of the Rare Disease Network of the NIH.  The Charles E. Holman Foundation was appreciative and honored by the invitation for our foundation to join with these esteemed organizations.

Learn more >>
 

The CEHF Wishes Everyone the Best of the Holiday Season and a Happy 2014 New Year!